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Showing posts from 2012

Update...

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Well, it has been a couple of months since I have updated this blog.  I thought today, with the kids being back in school it might be a good day to spend some time updating. 

Jerry has had a fun-filled summer.  We have actually had the opportunity to get away a few times this summer which was nice and refreshing.  After Jerry's appointment in June, which showed a very slight possibility of growth, we were a bit devastated.  But after some time, we both just started going back about our day to day living, just enjoying our family.  We were able to go camping 3 times this summer and we have a weekend getaway planned at the end of summer, so we are excited about that.  With 4 kids in tow, it is the most economical way to go on vacation.  We did, however have an opportunity to go to Branson, Missouri this summer for Jerry's family reunion and that was really fun. 

Today we shipped Hailey, Lizzy and Ashley off to their first day of school for the 2012-2013 school year.  It was a …

HAPPY BIRTHDAY!

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Well, today is my daughter's 14th birthday.   Happy Birthday Hailey!!

Today is a good day.  It is a good day all around.   We are celebrating my daughters life and we are thankful for every additional year each one of us receives! 

 I was pretty bummed the other day when I wrote my post, but today is a new day, I'm Happy!  Jerry and I have had many conversations over the last couple of days and Jerry has been a huge encouragement to me.  Jerry feels very confident in the fact that he is healed.  That God has already healed him, and that he needs to walk in that faith.  Last night, in our "Life Group" that we are part of, the people there blessed me in ways that they don't even realize.  I have been depressed and less than encouraged lately.  I want my husband to be in my life for many many more years and hearing the Dr say the things he said to us was discouraging.  Last night in our life group I was reminded of God's healing power and that God is in contro…

FAITH

Now faith is the substance of things hoped for, the evidence of things not seen.  By faith we understand that the worlds were framed by the word of God, so that the things which are seen were not made of things which are visible. ~ Hebrews 11:1,3

This is the scripture that Jerry has been reading over and over these last few weeks.  Our dear neighbor sent this to us in a card, and I don't think she knew that it would be so impacting to Jerry and I.  We both are familiar with scripture and we "know" what the bible says, but this scripture was very powerful to us.  Jerry has been reading it every day.
Before our appointment today, Jerry kept saying "I think God is telling me to walk by faith, not by sight".  I almost hated hearing him say that....cause I knew that if that were true, that if God was telling him that....that it meant that the tumor was still going to be there.
Well, Jerry had his MRI this morning.  The tumor is still intact, and in fact, it appears t…

One Year....

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Wow, I really can't believe it has been a year since this roller coaster ride started.  It has been quite a ride, that's for sure.  Jerry and I have learned so much over the last year, not just about health issues, the food we eat, what an Oligoastrocytoma is, or even about medication....we have learned how to cope.  We still struggle with the coping mechanism, but when one of us is down, the other is up....it works out OK that way. 

    A year ago today, Jerry and I were sitting at the hospital wondering what the "mass" in Jerry's brain was and wondering if it was anything to worry about.  We didn't know if it was an infection, or a tumor.  I remember being scared and confused and I remember Jerry was sitting in his bed talking on his phone to his employees, still running his business, hospital gown and all!

    Another memory I have is when Jerry's mom brought our son up to the hospital to see his daddy.  It was an emotional moment.  Brayden was 11 mon…
Well, it seems that life has been a little crazy lately.  Our oldest daughter is running track, our middle daughter is playing softball and our youngest daughter is in dance and we are attending each ones events as much as we can, all with a 1 year old in tow.....  Jerry has been very tired lately (I can't figure out why? :)  He is a very strong man.  I tell him to skip this practice, or this meet, or this game and he says "No" I get a chance to be a Dad all over again, I'm going to do it right and learn from some of the mistakes I made with my older boys!  From what I hear from Jerry's mom and even his oldest son Brad, he was a wonderful father to his older boys....but isn't it true that as we get older, we do realize some of the mistakes we made and try to do better all over again???  Jerry is a wonderful step father to our girls and a wonderful father to our son.  His older boys are grown and on their own and he loves them both very much and is thankful fo…

Another Crazy Week!

Well, it was definitely another crazy week in our house!!  Jerry had some infections on his arm that just wouldn't go away.  Being a mechanic, he always has scrapes and scars on his arms and hands...but these just weren't healing like normal.  Wednesday night after spending 2 1/2 hours at our daughters Track meet, we decided to go to Urgent Care.  Jerry could hardly bend his hand and he looked terrible with about 5 different sores on his arm and hand that were infected.  Needless to say, the Dr. diagnosed him with a staff infection.   He has been on antibiotics since Wednesday night and everything already seems to be getting better. 

Jerry has been feeling very tired lately, but other than that, he has been doing well.  He is a hard working guy, so he doesn't rest much as it is.  After learning what we have learned about our diet and nutrition and where our food comes from, we decided to try out raising our own chickens for meat and eggs.  Currently we have 18 "meat&…
Jerry has been feeling pretty good lately!  He has been taking Protocel since March 16, and he really feels like it is working.  Our entire family was hit by a bad flu bug last week and it did seem like it took more of a toll on Jerry than it did the rest of us.  It had me a little worried, but I think it was just because his body is working so hard already, and then trying to fight the flu on top of everything else was difficult.  He is better now and seems to be back to himself.  He feels like protocel is helping him in other areas of his wellness as well. 

Sorry for the short updates, but there is just not much to report.....but in this case...no news is usually good news!!

If you want to learn more about protocel and how it works, please click on the link below.

http://www.youtube.com/watch?v=Nzba8vL_TXc

Our New Family Photo, plus some others taken by our daughter-in-law Nici.

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www.nicoledanielsphoto.com  check out Nici's website, she is a very talented photographer!!

Things have been a little quiet here lately, and I haven't posted much.  I don't have a lot of time right now, but I just wanted to let you all know that everything is FINE!  I have had people worried because I haven't posted.  Jerry is scheduled to have another MRI this month, he isn't sure if he is going to get it now, or wait a little longer to see if the new supplement he is taking is working at all.  He is taking something called PROTOCEL.  He has done some research and spoke to I think 4 different people who have taken it for cancer and their cancer is now gone.  It is less expensive than any other non-traditional treatment we have looked into.  What caught our interest with PROTOCEL initally was from a book called "Outsmart your cancer".  I would hightly recommend this book for anyone who is battling some kind of cancer.  Their are several other options out …

Texas Trip POSTPONED!

I wanted to update everyone regarding a decision that Jerry and I recently made.  We have decided to hold off on going to Texas until we get a few issues ironed out.

First of all, we found out that Dr. Burzynski is being taken to court by the FDA again this spring and we don't want this to interfere with Jerry's treatment.  We would hate to put forth the amount of money that we need only to find out that we cannot finish the treatment due to FDA interference.

Secondly, when we have spoken to the clinic in regards to Jerry's treatment, they have been very vague regarding the length of time that Jerry would need to be treated for.  We recently spoke to a patient of Dr. Burzynski's that said she has been on the treatment for a few years.  We know that at this time, we couldn't afford this treatment for a couple of years and if that is the case, we want to think more wisely about how to spend the money that we have.

Jerry has learned about another treatment option call…

Crumbs in the Peanut Butter Jar!!

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OK, so moms are full of wisdom, right?  Well, my mom very recently gave me some words of wisdom...it was a very simple message, but it was true......did I really care if their were crumbs in the peanut butter jar?

Last weekend, we had a fundraiser to raise funds for our upcoming trip to Texas.  The fundraiser was held at our church, which is 45 minutes from our home.  Crazy, I know....but Jerry and I love it there, we feel like we are part of one big family.  Anyway, the fundraiser was held on Saturday evening, and we knew we wouldn't be getting out of there till late that evening...so I asked my parents if my family of 6 could stay with them that Saturday night so that we didn't have to drive 45 minutes home that evening and then 45 minutes back again the next morning for church.  My parents have a large home with 4 bedrooms and they are always eager to have grand kids (& kids) spend the night with them, so as I expected, it was not a problem.  Sunday morning came, and my…

Appointment with Dr. Burzynski!!

Jerry and I were sitting around the table with our kids on Monday evening.  Ashley, our 7 year old, started telling us about the story she had just learned in Sunday School about Jesus feeding over 5,000 people with only 2 fish and 5 loaves of bread.  Jerry proceeded to tell Ashley what that story means.  He explained to Ashley that it is a story about "faith".  Jesus didn't write down a plan and tell the disciples exactly how he was going to feed 5000 people with 2 fish and 5 loaves, rather he just told them to 'feed the people'.  I was talking to my mom about this story, and she told me (she is Ashley's Sunday school teacher) part of their lesson was about how God uses even children to tell his story, not just grown ups.  I believe that God put that story in Ashley's mind that evening for a reason.  It helped both Jerry and I to remember that we may not have an exact financial plan laid out for us to be able to afford this treatment, but we feel strongl…

Special Prayer Request

I am asking prayer today for a young girl.  This young lady was diagnosed with a brain tumor in December 2011.  She had surgery in December where they removed 90% of her tumor.  She was left in a wheel chair with paralysis on her left side. She then proceeded to have chemotherapy and radiation treatments that her Doctors recommended.   This young girl recently went back to the Doctor to have an MRI to check on the tumor after her chemotherapy and radiation therapy.  To her and her families demise, the tumor was back, and it was larger than it was prior to her surgery.

Please remember her and her family in your prayer.

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This story really saddens my heart.  This family was given hope by the Doctors with 'Traditional Treatment' and this treatment has failed this young girl.  The statistics that I have come across regarding traditional treatment is not very good at all!  The poison that they put into…

Happiness

Jerry and I had a wonderful weekend with our Family.  On Saturday we celebrated Ashley's 7 1/2 birthday!  Her birthday was in August, and it just got overlooked because of all the stress we were under at the time.  I told Ashley that we would have a party for her during the school year, and she was happy with that.  What a joy it was to see her so happy.  Jerry and I, with the assistance of my 11 year old daughter, watched 6 little happy 6 & 7 year olds pin the tail on the donkey, break open a pinata ,play musical chairs, play hot potato, jump on our trampoline, and dig into a delicious ice cream cake.   On Sunday we celebrated our "February" birthdays with my side of the family.  Our family is so large, that we have birthdays just about every month of the year!  To make it more simple, we get together once a month and celebrate.  We don't purchase expensive gifts, we just get together and enjoy each other.  Seeing the joy on my daughters face Saturday, and havin…

Faith!

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Clarity

OK, we need some serious prayer right now.  Prayer for clarity. 

Jerry is now so "over the top stressed" about the money involved, that he can't sleep, he can't work, he really isn't functioning well at all. 

He is not certain what to do.  There are cheaper treatments, or there is the option to do nothing.  He has seriously considered doing nothing.

As his wife, I try to listen, but I'm getting concerned.  We are trying to shuffle through medical bills, filling out paperwork to see if the hospitals will work with us financially, dealing with different charities and we are just getting really extremely overwhelmed.

If you can take a moment and just pray for clarity and direction we would appreciate it.

I Love my husband and I don't want him to give up!

The title to this blog may seem strange, but it is just my feelings coming out.  Jerry is becoming overwhelmingly stressed in regards to the amount of money that we are needing for his treatment.   He stated to me tonight that it's pretty crazy that he is more afraid of what this is going to do to us financially than what he is really thinking about what the tumor can do if we don't do anything about it.

We spent about 3 1/2 hours at the Burzynski clinic and the appointment was going really well.  We met with the Dr's and they discussed with Jerry and I a treatment plan that seems acceptable to us. Gene-Targeted Therapy.  We felt as thought the Dr's there were compassionate and caring, in fact, the entire staff was really "likeable".  We read stories of success, and had a really confident feeling.....then we met with the financial advisor.  We needed $1250 for today's consultation, $3500 for lab work, $10,000 when we come back to have his treatment starte…

We leave tomorrow......

I thought I would update, since I haven't been on here in awhile.  Jerry and I are leaving in the morning for Texas.  We have an appointment with Dr. Burzynski on Friday at 10:30.  We are very anxious for our appointment.  We plan to ask a lot of questions!!    Hopefully the clarity we are looking for will be found while we are there.  Jerry is still unsure whether or not he is willing to fork out the money they are asking for up front for the treatment.  Hopefully their answers will give him the comfort that he needs.  When we get back and the decision is made on what road we will be traveling down regarding treatment, I will post and let everyone know. 

Jerry and I couldn't be more grateful for the generosity of so many people in our lives.  Up until today, our flight was paid for (by a very generous friend) , our room was paid for (by a charity that I applied for called CincoCharities), and then of course, with the tremendous amount of financial support, our appointment is…

Update on how Jerry is doing...

I haven't posted anything personal for awhile, so I thought I would let all of you know how Jerry is doing on a day to day basis.  For the most part, he is doing REALLY well.  He is tired, don't know if that is from old age or his tumor :), but it could very well be because his body is working overtime trying to control this crazy group of unwanted cells!!  Every once in a while, Jerry will complain of a headache or a neck ache.  I try not to express my fear, but when I took him to the hospital, it was from a severe head and neck ache combined with a high fever.  Just last night, he wasn't feeling well and went up to bed about 10 minutes before I did.  While he was up there, I heard a big "thump" on the floor, my heart sank.  Come to find out, he was putting the laundry basket on the floor that I had forgotten about and left on our bed.  WHEW..... When I came to bed I told him what I had thought, and he told me that I should probably do some reading on Grand Mal …

Education or Medication?

Jerry and I have become obsessed with finding out what is healthy for our bodies.  Some people just have this natural tendency to do this, but for us, it took a crisis.  We are learning so much about nutrition, vitamins, the food we should eat, and the food we shouldn't eat.  We are learning that there are so many things that we can do for ourselves to help prevent cancer from even having the ability to create itself in our bodies.  I watched a video on line the other day of a woman who had a hamburger from a fast food restaurant that was 4 years old.  The hamburger was still intact with no mold on it.  The french fry that came with that hamburger was still yellow in color and also had no mold on it.  I'm to the point that I don't even consider fast food, "food" at all.  What is it that we are poisoning our bodies with?  One of the documentary's that we recently watched is called:  FOODMATTERS
http://www.foodmatters.tv/
I would strongly encourage you to view t…

GOD, Are you out there?

Have you ever had this thought?  I have, way too many times.  Personally, I don't believe God gets angry at us for questioning things, that means we aren't stagnant in our faith.  We are striving to understand, striving to know more so that we can do more.  I have never questioned God's existence, but I have wondered why he lets things happen to people.  I prayed for years for things that I still haven't seen answers for, or have I?  That is the real question.  I believe God is answering our prayers all around us and we just don't know it.  Have you ever had an experience in your life where at the time, you could not see his handy work, but when you looked back....you could see just what he was doing?  Well, I guess I'm there right now.  I cannot see his handy work in my husband having a brain tumor.  If he is the "All Powerful God"  the "Great Physician", why isn't he fixing my husband?  I'm reminded of this scripture:

Hebrews 11:6
Ne…

*FUNDRAISER* Hartland/Fenton Area!

When:    Saturday January 21

Where:  Heritage Hills Free Methodist Church   5530 Runyan Lk Rd Fenton

Time:    6pm

There will be several different bands coming to play country/gospel/bluegrass.  Jerry is in one of the bands that will be playing called Crossfire.

There will be a bake sale and I believe a silent auction as well.

Thankful for friends

Today I am really being reminded of how important it is to have family and friends in our lives.  Over the last month, Jerry and I have been overwhelmed with generosity from many people, several that we don't even know.  We are so thankful for our friends and our family and even our community!  In December I was sent a message by a stranger who is in the same group as me on facebook called "Hartland Moms"  She told me that they were making up t-shirts, and giving the proceeds to my family for Jerry's medical expenses.  WOW, I thought to myself....you don't know me, or my husband and if you did....well, you might not want to do all this for us.  Yes, I actually thought that!  We don't deserve this, but in the same token, we do need it.  Swallowing your pride can be very difficult at times, but in these circumstances, it is a small price to pay.   We were then approached by two of my daughters schools saying they wanted to have a fundraiser for us.  Again, we w…

Crying

We all cry, right?  Well, over the last...I'd say 5 years....I've done a lot of that!  Going through a divorce, dealing with decisions I made, getting married, having a baby...then of course, finding out my husband has a brain tumor.  People cry, but I CRY!!  If you know me at all, you know that I am like an emotional waterfall....when I'm happy, sad, scared, mad...it all comes out in tears.  There have been times that I felt guilty for crying, but then I remember that God made me just the way that I am suppose to be.   Did you know that it is a proven fact that crying reduces emotional stress, lowers your blood pressure, it removes toxens from your body that come out through your tears during emotional stress, it reduces the body’s manganese level, a mineral which affects mood and is found in up to 30 times greater concentration in tears than in blood serum, and it is also proof that you are human!

Anyway, I just had to write that because I thought it was pretty neat myse…

I can't wait till this feeling passes....

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When Jerry and I found out that he had a brain tumor, it was tough.  I would not let it show around him much, but as soon as I would get into the car and I was alone.....the tears would start shedding.  I'm a pretty emotional person already, so this is tough for me.  I try not to let my emotions show in front of my children either....I want them to not be afraid.  They are pretty oblivious.  My daughters "know" that he has a brain tumor, but I don't think they understand what it all means.  I think kids have a hard time seeing into the future with things like this.  Sometimes I wish I had a harder time.  I wish I could just live, and enjoy my family.  The feelings that both Jerry and I are having right now are very similar to the feelings we had when we first found everything out.  I guess it is just going to be expected from this point further.  It's almost like we live in denial in-between Dr. visits, then when we go, we get a reminder of how serious this is, a…

So Confused!

Well, Jerry had an appointment this morning with a new Neurosurgeon and we didn't really like what he had to say, although we did feel confident in his professionalism and his experience.  He is waiting for a few tests to come back that they ran from the biopsy tissue slides, but he has a strong suspicion that they tumor has changed or is in the process of changing from a Grade II to a Grade III.  Basically his explanation to us (which has been different from every Dr) was that Grade I & Grade II Brain Tumors are considered Benign but can change.  Grade III & Grade IV are considered malignant and have to be treated more aggressively.   If malignant, that means that the cells are changing and spreading more rapidly than they were before.  It is to be believed that Jerry has had this brain tumor for approximately 10-15 years already. 

So, at our appointment, we decided to ask about Dr. Burzynski and what he thought about alternative treatment.  Well, I won't repeat the …

More Information...

In August of 2011, we decided to get a second opinion regarding treatment.  The first Dr. we saw seemed uncertain as to what avenue we should take.  He consulted his "Brain Tumor Board" and half said surgery was a good option, and the other half said that just Chemotherapy and Radiation were a good option.  His advice to us was "I'm on the fence, I'm not sure what you should do".....????  Really?  I understand that Dr's have a difficult job and they don't always know what to do, so I guess I can appreciate his honesty, but we needed more clarity as to what direction to go into.  We had another apt with him 3 weeks later and he said that he was more certain now that surgery was a good option, and that chemo and radiation would be pointless.  Understand, that this is coming from a "Neurosurgeon", this is what he does.  We didn't feel confident.  So, now it is August 1, and we went to a new Dr.  A Neurologist.  He seemed confident and exp…

My Mind.....it doesn't stop

June 19, 2011   I remember the day so clearly, my husband of 1 year & 8 months were sitting in the hospital room after my husband was admitted with Meningitis symptoms.  The Dr. came in to tell us that there is a "lesion" on his brain.  I didn't know what to think at first.  I wasn't sure how to react.  They said it could be an infection, or it could be a tumor.  We waited for the results of his first MRI, our emotions were running high, but I was trying to be strong for him.  Trying not to let my fear and pain show.  It was his tumor, not mine....I needed to be strong for him.  The results came in.  "It looks like a tumor" says the Neurologist.  They recommended that we go to a different hospital to have a biopsy done.  They performed a biopsy and the results were in;  Grade II Oligoastrocytoma.  When my husband wasn't looking, I cried, I was scared.

My husbands biopsy was done on June 28, 2011.  My oldest daughters 13th birthday.  It was suppose t…