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Showing posts from February, 2012

Appointment with Dr. Burzynski!!

Jerry and I were sitting around the table with our kids on Monday evening.  Ashley, our 7 year old, started telling us about the story she had just learned in Sunday School about Jesus feeding over 5,000 people with only 2 fish and 5 loaves of bread.  Jerry proceeded to tell Ashley what that story means.  He explained to Ashley that it is a story about "faith".  Jesus didn't write down a plan and tell the disciples exactly how he was going to feed 5000 people with 2 fish and 5 loaves, rather he just told them to 'feed the people'.  I was talking to my mom about this story, and she told me (she is Ashley's Sunday school teacher) part of their lesson was about how God uses even children to tell his story, not just grown ups.  I believe that God put that story in Ashley's mind that evening for a reason.  It helped both Jerry and I to remember that we may not have an exact financial plan laid out for us to be able to afford this treatment, but we feel strongl…

Special Prayer Request

I am asking prayer today for a young girl.  This young lady was diagnosed with a brain tumor in December 2011.  She had surgery in December where they removed 90% of her tumor.  She was left in a wheel chair with paralysis on her left side. She then proceeded to have chemotherapy and radiation treatments that her Doctors recommended.   This young girl recently went back to the Doctor to have an MRI to check on the tumor after her chemotherapy and radiation therapy.  To her and her families demise, the tumor was back, and it was larger than it was prior to her surgery.

Please remember her and her family in your prayer.

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This story really saddens my heart.  This family was given hope by the Doctors with 'Traditional Treatment' and this treatment has failed this young girl.  The statistics that I have come across regarding traditional treatment is not very good at all!  The poison that they put into…

Happiness

Jerry and I had a wonderful weekend with our Family.  On Saturday we celebrated Ashley's 7 1/2 birthday!  Her birthday was in August, and it just got overlooked because of all the stress we were under at the time.  I told Ashley that we would have a party for her during the school year, and she was happy with that.  What a joy it was to see her so happy.  Jerry and I, with the assistance of my 11 year old daughter, watched 6 little happy 6 & 7 year olds pin the tail on the donkey, break open a pinata ,play musical chairs, play hot potato, jump on our trampoline, and dig into a delicious ice cream cake.   On Sunday we celebrated our "February" birthdays with my side of the family.  Our family is so large, that we have birthdays just about every month of the year!  To make it more simple, we get together once a month and celebrate.  We don't purchase expensive gifts, we just get together and enjoy each other.  Seeing the joy on my daughters face Saturday, and havin…

Faith!

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Clarity

OK, we need some serious prayer right now.  Prayer for clarity. 

Jerry is now so "over the top stressed" about the money involved, that he can't sleep, he can't work, he really isn't functioning well at all. 

He is not certain what to do.  There are cheaper treatments, or there is the option to do nothing.  He has seriously considered doing nothing.

As his wife, I try to listen, but I'm getting concerned.  We are trying to shuffle through medical bills, filling out paperwork to see if the hospitals will work with us financially, dealing with different charities and we are just getting really extremely overwhelmed.

If you can take a moment and just pray for clarity and direction we would appreciate it.

I Love my husband and I don't want him to give up!

The title to this blog may seem strange, but it is just my feelings coming out.  Jerry is becoming overwhelmingly stressed in regards to the amount of money that we are needing for his treatment.   He stated to me tonight that it's pretty crazy that he is more afraid of what this is going to do to us financially than what he is really thinking about what the tumor can do if we don't do anything about it.

We spent about 3 1/2 hours at the Burzynski clinic and the appointment was going really well.  We met with the Dr's and they discussed with Jerry and I a treatment plan that seems acceptable to us. Gene-Targeted Therapy.  We felt as thought the Dr's there were compassionate and caring, in fact, the entire staff was really "likeable".  We read stories of success, and had a really confident feeling.....then we met with the financial advisor.  We needed $1250 for today's consultation, $3500 for lab work, $10,000 when we come back to have his treatment starte…

We leave tomorrow......

I thought I would update, since I haven't been on here in awhile.  Jerry and I are leaving in the morning for Texas.  We have an appointment with Dr. Burzynski on Friday at 10:30.  We are very anxious for our appointment.  We plan to ask a lot of questions!!    Hopefully the clarity we are looking for will be found while we are there.  Jerry is still unsure whether or not he is willing to fork out the money they are asking for up front for the treatment.  Hopefully their answers will give him the comfort that he needs.  When we get back and the decision is made on what road we will be traveling down regarding treatment, I will post and let everyone know. 

Jerry and I couldn't be more grateful for the generosity of so many people in our lives.  Up until today, our flight was paid for (by a very generous friend) , our room was paid for (by a charity that I applied for called CincoCharities), and then of course, with the tremendous amount of financial support, our appointment is…